Ulcerative colitis (UC) is not typically considered a condition that can be cured. It’s a chronic, inflammatory condition in which the immune system attacks the large intestine. That said, a colectomy—the removal of the large intestine—essentially “cures” UC symptoms like frequent, bloody diarrhea and abdominal pain.
However, patients have to weight the risks and benefits of a colectomy. It's a tough decision, and the side effects and recovery can be unpleasant. For people with mild symptoms, it’s easier to make lifestyle tweaks and stick to a treatment regimen. However, for people with severe ulcerative colitis—such as Chelsea Freeman—the inflammation may be so serious that surgery is the only option.
Freeman was diagnosed with a rapid-onset, aggressive form of UC that affected her entire colon. She tried almost every possible type of treatment for UC, but all of them failed to bring relief or triggered unpleasant side effects. Learn more about her experience with UC treatments here.
She decided the colectomy was her best option after consulting with her surgeon, Sergey Khaitov, MD, who specializes in colon and rectal surgery at Mount Sinai Beth Israel.
“It is a very difficult decision to proceed with surgery [for a] young person,” says Dr. Khaitov. “It may change the body image perception, [and] it will require certain dietary modifications when you have an ileostomy.”
Freeman describes her colectomy as “grueling” and much more difficult than she anticipated. Her colectomy was completed in multiple steps, and each one brought its own set of challenges for Freeman.
“Post-op was hard. I lost a lot of weight. I had to be counseled by ostomy nurses, and I had never even heard of an ostomy before, and I didn’t realize how complicated it was to take care of,” says Freeman.
The ileostomy is a hole made in the abdomen during the colectomy. Because the large intestine is removed, it can no longer be used to pass stool through the rectum. Instead, the small intestine passes waste through the ileostomy and into an external pouch (called an ileostomy bag). The bag must be emptied several times a day, and the entire apparatus must be changed every four to five days, according to Dr. Khaitov.
“I took baby steps, and I got … used to the fact that I was just going to have intestines sewed to the outside of my body, which still sounds insane,” says Freeman.
The ileostomy bag is temporary: Eventually, another surgery connects the small intestine to the rectum, and the individual can resume having control of bowel movements. “It’s a little bit hard in the beginning, but the vast majority of patients, especially young patients, will do beautifully,” says Dr. Khaitov.
Sure enough, after recovery, Freeman is enjoying a life free of UC symptoms. “I’m so excited for my future and I’m so grateful that I had those surgeries done.”